My name is Cindy Miller and I have had Visual Snow Syndrome for most of my life. In fact, I can’t seem to remember when it started. I have suspected that I had this syndrome many years ago as I have seen various posts on the symptoms. It seems recently that VSS has come to light and its about time. I have been to so many eye docs and doctors who have tried to treat the symptoms separately. I have not run across any specialist that is aware of VSS or even remotely interested in learning more about VSS.
I wear Irlen filtered glasses ( I am a certified screener) and the lenses have been a big coping mechanism for me to cope with life without chronic headaches. Otherwise the world, spins and swirls and reading is very difficult for me. I was not aware of the other various symptoms of VSS such as tinnitus, lack of night vision and depersonalization. and anxiety. I have always suffered from great anxiety and feel that my brain is on constant overload. Additionally, I am blind in my left eye and the VSS in my right eye makes everything much harder.
My hope is that someday I will be able to receive the right treatment for VSS and maybe encounter the chance to see things clearly. Thank you Eye On Vision for your research and awareness!