UPDATE 11/27/2021 - Dr. Puledda has had an overwhelming response from patients, and now has enough email responses to sort through and qualify. If more patients end up needing to email for interest, I will update this post again. For the time being they have received enough respondents.
Statement from King's College:
“In spite of COVID pausing laboratory work for a large part of 2019 - 2020, King’s have now recommenced studies into VSS with renewed vigour. Their key researcher, Dr Francesca Puledda under the supervision of Professor Peter Goadsby, recently received a Prize Fellowship from the College to continue her studies. Dr Puledda aims to understand more about the underlying biology of the condition, key insights from which will set the basis for an experimental trial to assess the efficacy of neuromodulation as a targeted treatment for VSS.”
Visual Snow Research Study
What is the study about?
The aim of this trial is to further understand the brain processes underlying Visual Snow Syndrome and Migraine.
Who can take part?
Researchers are looking for participants:
If you agree to take part, a study doctor will conduct the appropriate assessments to ensure you are suitable for the study. You will then be asked to:
If you would like to take part in the study or if you have any questions please contact the Visual Snow research team via email:
Only 25 spots available! We would love for you to partner with us. Each day a company will be featured as our sponsor of the day. Your company logo, link to your website, and description that you provide will be featured on our social media platforms (LinkedIn, FB, IG, and Twitter). A donation of $100 is asked for days 1-23 and $500 for days 24 and 25.
Please consider collaborating with us with your sponsorship gift during this holiday season. Which day can we sign you up for?
Together, we can continue ensuring that medical research continues into Visual Snow Syndrome, so effective and targeted treatments can be developed for those suffering from this incurable and untreatable debilitating condition.
Visual Snow Syndrome (VSS) comes with many debilitating symptoms, with the main symptom being millions of moving dots across their entire visual field 24/7. This resembles “TV static.” In addition to the static, VSS has several other persistent visual and physical disturbances that patients experience constantly. No break. No relief.
We thank you in advance; your support is key to reaching our goal. Your sponsorship is greatly appreciated.
Here’s the easy breakdown of what we need from you:
1. select two dates that you want in order of preference (in case your first choice is taken already we will go with your second choice)
2. Email (email@example.com) or message your logo, website link and company description that your want included in the social media posts we make
3. Submit your donation at EyeOnVision.org or CureVSS.com (Checks are also accepted at Eye On Vision Foundation 14614 Josair Dr Orlando, FL 32826)
Your support is key to reaching our goal this holiday season.
Are you already thinking about your holiday cards for this year? Minted has a ton of beautiful options AND you can save 20% with promo code FUNDRAISEEYEONVISION.
Plus, 15% of your order will be donated to the Eye On Vision Foundation to support groundbreaking Visual Snow Syndrome research. Pretty awesome, right?!
Shop now at Minted.com.
When you shop at #AmazonSmile, Amazon donates 0.5% of the purchase price to Eye On Vision Foundation Corp.
Also make sure if you shop #Amazon on your phone that you turn on AmazonSmile in the settings section of your Amazon #app. This will allow your purchases on your phone to count towards EOVF.
Here is the link http://smile.amazon.com/ch/20-5394501
Zoom call with Monash last night to discuss funding strategies for groundbreaking research into Visual Snow Syndrome (VSS). We would love to connect with businesses and individuals who would like to help change lives in huge ways. Please connect with our page, or email myself, Jen Ambrose at EyeOnVision@gmail.com, if you would like to get involved or make a financial contribution to this life changing medical research into VSS. EyeOnVision.org
Today we are launching a crowdfunding campaign, as an easy and shareable way to come together to make a big difference in the VSS community. Funds will be donated to Monash University for VSS research under Dr. Fielding