King's College Recruiting VSS Patients for NEW Study

UPDATE 11/27/2021 - Dr. Puledda has had an overwhelming response from patients, and now has enough email responses to sort through and qualify. If more patients end up needing to email for interest, I will update this post again. For the time being they have received enough respondents. 

Statement from King's College:
 
“In spite of COVID pausing laboratory work for a large part of 2019 - 2020, King’s have now recommenced studies into VSS with renewed vigour. Their key researcher, Dr Francesca Puledda under the supervision of Professor Peter Goadsby, recently received a Prize Fellowship from the College to continue her studies. Dr Puledda aims to understand more about the underlying biology of the condition, key insights from which will set the basis for an experimental trial to assess the efficacy of neuromodulation as a targeted treatment for VSS.”

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Visual Snow Research Study
 
What is the study about?
The aim of this trial is to further understand the brain processes underlying Visual Snow Syndrome and Migraine.
Who can take part?
Researchers are looking for participants:

• Ages 18 and over
• Have a diagnosis of either visual snow syndrome or migraine

If I take part, what will it involve?
If you agree to take part, a study doctor will conduct the appropriate assessments to ensure you are suitable for the study. You will then be asked to:

• Have a telephone call with a researcher
• Attend a study appointment
• Complete questionnaires and a physical examination
• Undergo non-invasive and non-painful neurophysiological tests (transcranial magnetic stimulation and electroencephalography)

Full details of the trial, and your involvement, will be provided by the study team and also explained during your first visit or telephone call. You are encouraged to ask as many questions, and take as much time as you need, in order to make an informed decision about whether to take part.
If you would like to take part in the study or if you have any questions please contact the Visual Snow research team via email:
[email protected]
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