What is Visual Snow?

Visual Snow is a condition that appears similar to static on a television set, appearing across the entire visual field. Learn more ...

What are Floaters?

Floaters are a condition characterized by the appearance of specks, or spots appearing either intermittently, or constantly across the visual field. Learn more ...

What is Macular Degeneration?

Macular Degeneration is a visual disturbance that can result in loss of central vision, which often entails inability to see fine details, to read, or to recognize faces. Learn more ...

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************** News on a NEW VS Study out of London ********
A NEW Questionnaire-based study has started for Visual Snow Research out of King's College. If you wish to participate you can send the information below to 

This e-mail address is being protected from spambots. You need JavaScript enabled to view it , and you will receive an email back with information regarding the study! I've already received my email back from them! This is an ONLINE study, so it does not matter where you are located. They are looking for a large number of participants

 

Please provide the following information within your email:

Name

Address

Date of Birth (Day/Month/Year)

Telephone number


1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue. 

example:       
"Yes, please keep my contact details and you may contact me for research purposes."


2) Brief description of all symptoms you relate to visual snow syndrome. 
   

3) Short description of visual symptoms in own words:

 

4) Visual snow: what type (chose one):

-          black and white (i.e. only black dots on white background, white dots on black background)

-          clear (i.e. color of the background)

-          flashing (i.e. always white, brighter than background)

-          colored

-          all of these


5) Other symptoms (please only answer yes or no)


-          After images

-          Trailing of images in the vision

-          Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

-          Floaters in vision

-          Colored clouds or waves with eyes closed

-          Flashes of light

-          Impaired night vision

-          Sensitive to  light

-          Tinnitus


 
************* EYE ON VISION FUNDRAISER TODAY ON FACEBOOK ************


Please follow a moment to follow this link for information on our current fundraiser for Eye on Vision! This is a fun way to support EOVF and treat yourself to something gorgeous for yourself, child, spouse or loved one!!! This will be ending tomorrow, so please click now!!!


 
VS Questionnaire

Dear community,

I am asking if you would kindly consider filling in my questionnaire regarding sensory perception and visual snow. At present I am a third year undergraduate at Sussex university and would like to help visual snow sufferers by contributing to research in the area. It also benefits the research area of brain connectivity. More information is given on the pages provided on this link: https://universityofsussex.eu.qualtrics.com/SE/?SID=SV_73959yicqGpRWGF

Thank you for your time

Katie McKenzie


 
NEW Email address to mail to for VS study
Happy Holidays!

We have a new email address set up for English speaking patients to write in to who would like to participate in the next phase of Visual Snow Syndrome research. Please note, that if you have already submitted your information it is on file with the doctors and there is no need to resubmit. 


Please provide the following information within your email:

Name

Address

Date of Birth (Day/Month/Year)

Telephone number


1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue. 

example:       
"Yes, please keep my contact details and you may contact me for research purposes."


2) Brief description of all symptoms you relate to visual snow syndrome. 
   

3) Short description of visual symptoms in own words:

 

4) Visual snow: what type (chose one):

-          black and white (i.e. only black dots on white background, white dots on black background)

-          clear (i.e. color of the background)

-          flashing (i.e. always white, brighter than background)

-          colored

-          all of these


5) Other symptoms (please only answer yes or no)


-          After images

-          Trailing of images in the vision

-          Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

-          Floaters in vision

-          Colored clouds or waves with eyes closed

-          Flashes of light

-          Impaired night vision

-          Sensitive to  light

-          Tinnitus 




 
VS patients needed to keep diary

We are reaching out to patients with visual snow to begin keeping a daily diary to track symptoms. There are no specific guidelines, but some suggestions might be to track how lighting conditions effect your VS, or how foods, activities, anxiety affect how much or how thick and fast your static is? No need to turn your diary in right now, just start keeping track.


 
Visual Snow Research Has Begun
SEEKING GERMAN SPEAKING PATIENTS FOR VISUAL SNOW STUDY

Hello Everyone! I have really great news! The Munich IRB has just approved our study and the doctors are starting to recruit now.

They are working through the list of emails that we have received in the last year trying to get in touch with as many patients as possible.

For now, they have only approval for a German consent form - so in the beginning, they will focus on German speaking patients, but the projects in London are coming soon and then they will include English-speaking patients. (This does not mean that you need to be from Germany or live in Germany, but you do need to know how to read and write in German for the purpose of the consent forms.)

For an expedited contact, this email-address was generated and should be used by the German speaking patients who wish to apply:

This e-mail address is being protected from spambots. You need JavaScript enabled to view it

I only have the English version of the initial questions, so I apologize for that considering I'm asking for patients who speak German. I'm hoping that many will speak both. Here is the information that will be helpful for all GERMAN-SPEAKING PATIENTS to send along to the email above.



Name

Address

Date of Birth (Day/Month/Year)

Telephone number


1) Please make a brief statement that you are willing to be contacted for research. This is a European data protection issue.

example:      
"Yes, please keep my contact details and you may contact me for research purposes."



2) Brief description of all symptoms you relate to visual snow syndrome.
  

3) Short description of visual symptoms in own words:

 

4) Visual snow: what type (chose one):

-          black and white (i.e. only black dots on white background, white dots on black background)

-          clear (i.e. color of the background)

-          flashing (i.e. always white, brighter than background)

-          colored

-          all of these


5) Other symptoms (please only answer yes or no)


-          After images

-          Trailing of images in the vision

-          Blue field entoptic phenomenon (i.e. white squiggly lines moving pulsating on the blue sky)

-          Floaters in vision

-          Colored clouds or waves with eyes closed

-          Flashes of light

-          Impaired night vision

-          Sensitive to  light

-          Tinnitus


-------------------------------------------------

I'm so thrilled that this day has come. I have been working with the doctors for nearly a year now to get this back off the ground.

Thank you to all who have applied. Remember, English speaking patients will follow, but for now, only those who speak German, please apply.









 
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