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A
communication to all Visual Snow sufferers participating in the London
Questionnaire Study on Visual Snow Thank you for your extraordinary interest in the London
Questionnaire Study on Visual Snow! So far, we have been in contact with over
450 subjects, who expressed interest in participating in our research on this
disabling condition. We have emailed the documents for the study including two
questionnaires to a large number of you. To date, however, only 67 have returned
both documents. This is neither a representative sample of the 450 subjects nor
is it sufficient to understand the condition Visual Snow in detail. Direct participation from the Visual Snow community is extremely
important for our goal to advance research and with it treatment of this
problem. With this update, we would therefore like to invite all subjects to help
us by returning their questionnaires as soon as possible. We believe that this
study will gain significant important information on Visual Snow, but only if
we are able to reach a substantial and meaningful number of participants. Thank you again for your help and collaboration!
Professor Peter J Goadsby
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