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VISUAL SNOW interviews with Dr. Schankin from UCSF in 2011 and 2012 PDF Print E-mail

To all patients, who have participated in the telephone interview study on VISUAL SNOW with Dr. Schankin from UCSF in 2011 and 2012.

 

Dr. Schankin is now working at Bern University in Switzerland. He is building a research group on visual snow. Together with his colleague, Dr. Scutelnic, they are continuing with research on visual snow and would like to re-contact ALL participants from the interview study done in 2011 and 2012!

 

They would like to understand how your symptoms have developed in the last years to conclude, which factors might influence the evolution of visual snow.

 

All participants who agreed to be contacted again in the previous study have already been contacted by e-mail.

 

Unfortunately, only a small proportion (less than 30%) has replied so far!

 

To be able to understand the development of visual snow over the years, it would be of great importance to obtain information from as many participants as possible from the initial study. The answer to this question is of great importance for patients and for doctors, since this will allow – for the first time ever – informing patients about therapeutic options and natural course based on evidence!

 

If you would like to continue helping with research on visual snow…

-       …please check if you have received an e-mail from:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  (please also check your spam folder) or

-       …please send an e-mail to  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  to let us know how to reach you

 

To illustrate the importance of your support: Prior to 2011 (the start of your previous study), there were about 5 publications per year on visual snow. With your help in the previous study, the number of publications increased continuously every year with 25 in 2017 (see histogram, from https://www.ncbi.nlm.nih.gov/pubmed).

 

 

And: Visual snow has been recognized by the International Headache Society as a new disease in the appendix of the International Classification of Headache Disorders 3rdedition (https://www.ichd-3.org/appendix/a1-migraine/a1-4-complications-of-migraine/a1-4-6-visual-snow/). This gives a diagnosis for all patients affected and a clear target to be addressed for future research!

 

Thank you for your support - your help is crucial to advance research on visual snow!